Skilled nursing facilities that provide care for individuals with degenerative neurological and neuromuscular diseases deal with a wide array of patients who are all facing different challenges. One disease that they often see is spinal muscular atrophy. On the surface it may seem like one disease but in reality, it comes in a handful of forms. Plus, the disease may take on other names as well. Examples include, but are not limited to Kugelberg-Welander and Werdnig-Hoffman disease.
However, all of the forms prevent individuals from living without some form of assistance. For instance, people with certain types of the disease unfortunately show symptoms well before their second birthday. The symptoms vary but frequently include difficulty standing, breathing, sucking, swallowing, sitting and walking. Because of this, a skilled nursing facility must generally help those individuals with a number of things, including their personal nutrition, fluid intake, ambulation, toileting and bathing. While these activities of daily living are important, choosing a skilled nursing facility that specializes in pulmonary and tracheostomy care enhances the quality of life.
Other individuals may not show signs of illness until they reach adulthood. As such, they may have had a chance to reach certain developmental milestones before the disease takes hold of their respective bodies. Therefore, they may be able to live with minimal assistance from others until complications strike. For example, they could contract pneumonia or another respiratory related illness and need ventilator care. In this case, it’s important that they have a group of highly trained staff to help them. This is something that the staff at Fox Subacute does daily, because we care about the health- and happiness of our residents.
Skilled Nursing Facility
Given the wide age span involved, it is important that people diagnosed with spinal muscular atrophy are placed in the best, skilled nursing facility. For instance, babies and toddlers would best be served by a subacute facility that specializes in children. Adults on the other hand, would likely prefer to have their skilled nursing care provided in a childless environment. Of course there may be exceptions on both accounts, especially as the child transitions into young adulthood.
Choosing a skilled nursing facility that is equipped to care for the developmental transition from youth to adulthood will help them be emotionally connected to the decision making process. As adults, we take for granted the ability to select where we choose to live. Just because the individual is on a trach or ventilator, does not diminish their quality of life.
Our admissions specialists and social workers work with each new resident to help make the “move” to our facility comfortable and efficient. For further assistance in choosing a location for someone with spinal muscular atrophy, please contact the staff at Fox Subacute skilled nursing facility.